I am so saddened by the news that Blair Chapin, the daughter of our friends Susan and Roger Chapin, has passed after her long and hard fought battle with Sanfilippo syndrome. Despite her short time here, she left a lasting impact on each person she knew and on the disease that she and her family have fought so hard to find a cure for.
In Blair’s honor, I invite you to visit this page to learn more about her story and about Sanfilippo syndrome: https://www.gofundme.com/iwontletgo
